Title
Citizen Science to Further Precision Medicine: From Vision to Implementation
Publication Date
12-3-2019
Document Type
Article
Abstract
The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can im- prove both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
Publication Title
JAMIA Open
DOI
10.1093/jamiaopen/ooz060
Publisher Policy
Open access
Open Access Status
OA Journal
Recommended Citation
Petersen, C., Austin, R. R., Backonja, U., Campos, H., Chung, A. E., Hekler, E. B., … Valdez, R. S. (n.d.). Citizen Science to Further Precision Medicine: From Vision to Implementation. JAMIA Open. https://doi.org/10.1093/jamiaopen/ooz060
Source fulltext URL
https://academic.oup.com/jamiaopen/advance-article/doi/10.1093/jamiaopen/ooz060/5651081
