Title

Citizen Science to Further Precision Medicine: From Vision to Implementation

Publication Date

12-3-2019

Document Type

Article

Abstract

The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can im- prove both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.

Publication Title

JAMIA Open

DOI

10.1093/jamiaopen/ooz060

Publisher Policy

Open access

Open Access Status

OA Journal

Source fulltext URL

https://academic.oup.com/jamiaopen/advance-article/doi/10.1093/jamiaopen/ooz060/5651081

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